What help is there for relatives caring for patients?

(Extract from Witten-Herdecke University patient guidelines)

Dementia is an inconceivable burden for relatives caring for patients. They struggle for many years with behavior patterns, all the usual solutions and strategies for which fail. They often carry out caring responsibilities around the clock, which are very burdensome and for which they get little support. Finally they have to say goodbye to a loved one. Nobody can withstand this constant strain without support and relief.

Advice centers

At advice centers, for example, Alzheimer's Associations, it is possible to obtain information and advice from specialists (social workers, psychologists, etc.) about the disease picture and its related aspects such as legal and financial questions, support possibilities, etc. in one-to-one discussions.

Groups for relatives

Self-help and advice groups, led by specialists, serve as an exchange for personal experiences. They impart knowledge about the disease, suggestions and tips. They also offer the opportunity to express freely feelings of despair, grief, guilt, anger or disappointment in an atmosphere of sympathy and understanding.

Home care

When home care, even with additional help, can no longer be maintained, usually the only remaining option is residency in a nursing home which patients cannot leave without being noticed. Good homes should protect the privacy of patients, promote their independence, provide for mental stimulation and physical fitness, and involve relatives in caring for patients if desired.